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Hi everyone,

I have a couple of quick questions. First, beyond the obvious psoriasis, do any of you have any other skin issues? I have these “whelps” on my face that flare up occasionally. They can look like very large bites, only oddly shaped. More like hives, only not that big. Also, starting about four years ago, I have pin-point red dots all over my body. They look like minuscule blood blisters (think microscopic in size, though). Also, so any of you suffer with extreme headaches? Many of mine are sinus, I think, but many are related to the problem in my neck.

Thanks for any info.

Janice Hanna Thompson

Is psoriatic arthritis covered by the standard medicare coverage or is this new condition going to cost me my house and savings just to live without pain. Any help would be great.

“helplisa2001″

I just signed up for the co-pay assistance with Enbrel. The brochure they gave me said they would refer those without insurance to ENcourage Foundation (non-profit foundation supported by Amgen and Wyeth) I think you have to call to get referred… 1 800 436 2735. I don’t know if they require dr referral as well. Good luck, hopefuly they will be able to help. Becca

Hi- thanks for all the support when I asked about sleep study. I was talked into it- I went- and I have severe sleep apnea and will get my c-pap tomorrow. I had a “split study” so I did wear CPAP (continuous positive air pressure) mask half the night and it made a HUGE difference in how I felt (still had pain but able to do more). I also have hyper-tension and depression since teenager and hoping that CPAP machine will help that. I was SHOCKED and TERRIFIED at how hard my body works during sleep!! Just FYI- I am not “typical” sleep apnea stereotype-I’m not obese, 46yrs old and my husband has never c/o me snoring (I just quit breathing). I hope it works!! Janice

Does anyone know if Enbrel has a program for people with no insurance for just psoriasis? I know that people on this list have found help there for their PA, but wondering if Enbrel helps those with just bad psoriasis? Thanks.

Linda in WA.

I have been on MTX for  15 yrs and only have my blood checked every 3-4 months. 

Natalie Shorter

I was diagnosed with RA and Fibro. in Nov.2003. I live in northern WI and don’t
really have much of a choice of doctors up here. The doctor I see now has me
taking Plaquenil, which we tried initially in 2003 and did not help but she
recently decided to try putting me on it again in adition to my other meds. I
am also taking Methotrexate and Remicade. I have a very physically demanding
job so I have alot of pain especially at night after work. I have asked
repeatedly for something to controll the pain so I can sleep at night but all
she will give me is sleeping pills which I can not take because they leave me
too groggy in the morning to do my job. This doctor refuses to even consider
pain medications other than aleve. My advice from my doctor was to quit my
job, sleep more and try yoga for my fibro. pain. I am a single mother of 2
kids. I work 2 jobs because I have to to support us. My job schedule does not
allow for 8 hours of sleep at night. I work as a paramedic for a 911 service. I
can not go to work groggy and foggy headed. People’s lives depend on my being
clear headed at work. Has anyone else had any luck getting their doctor to
listen to them when asking for pain control? I really feel like she does not
believe my pain is real. When I tell her I hurt she just says “well you have
Fibro. you need to work on relaxation.” Any advice would be greatly
apppreciated.

Hi, Im just wondering if people with RA can get Botox??Isnt it a virus or am I wrong?Thanks.

I have come to believe that this is a love/hate relationship. I don’t love the fact I have this but it does make you stop and to think about the important things you have in your life. Which can be a blessing in the times we are in now. I am sorry to hear that you suffer as I do, but nice to hear that someone understands me and my pains. I have been trying to explain it to my boyfriend but he doesn’t understand. He wants to know “what do you have planned for tomorrow” and I tell him “I’ll know when I wake up and see what is hurting that day”. This is my daily plan everyday since I went on medical leave in May this year. Instead of planning your day around work and kids, I plan around PsA and kids. I have missed alot since this all started. Any suggestions about how to get my life back??? In some since of normal (PsA normal)??? “skinnc71″

The Methotrexate keeps the body from fighting the biologics that you are taking. I have blood work every 6 weeks when I get my infusion of Remicade. I was getting blood work done every 8 weeks with infusion but they decreased the weeks for my infusion and I always get it done together. The MTX makes me sick so I have to take meds for that to so I won’t start vomiting. I been on it for 3 1/2 yrs now and don’t see stopping it in my future. I see a rheumy at UNC Hospital in Chapel hill, N.C. and she is great. “skinnc71″

When I started the methotrexate I was getting monthly blood tests for 4 months then it has changed to every 3 months since the first ones were good.  I think that is the norm.